We finally have a date scheduled for Ben to have electrodes placed in his brain. We meet with the neurosurgeon on May 11, and the surgery is scheduled for May 27.
Some history: Ben’s seizures have been growing worse over the past few years. In the past 2 months, they’ve started happening so frequently that it has been difficult for him to do most things. We’ve been in and out of the hospital and it’s getting harder and harder to control his seizures.
On May 27, Ben will be going into the hospital for surgery. The doctors will be implanting electrodes inside his brain and then monitoring him in the hospital for several weeks. The goal is for Ben to have anywhere from 5 – 10 seizures while in the hospital so that the doctors can find the specific location (or locations) where the seizures originate. Once they do this, we will know more about what our treatment options are.
We are praying that Ben will be a candidate for resection: brain surgery where they remove the portion of the brain that is responsible for causing the seizures. But we still need to determine many things before we can get to this point.
I am thrilled that we finally have a date for this test, but we’re both still overwhelmed. Ben is concerned that he won’t have enough seizures for the doctors to learn anything (not a concern of mine!). I am afraid that we’ll go through all this and find out that Ben is not a candidate for surgery and there’s nothing more that the doctors can do to help.
Our biggest prayer requests are:
- That the time would pass quickly and that we would be at peace while we wait for this procedure.
- That the seizures would lessen during the month of May.
- That Ben would have seizures quickly while in the hospital so he doesn’t have to stay too long.
- (and this is really the biggest one): That we would find out that Ben IS a candidate for surgery to stop the seizures.
We will be using this blog to update our family and friends on Ben’s surgery. But we’ll also be using it to record our family memories.
Thank you for walking with us during this time. God is using our friends and family to remind us of His great love for us, even when we do not understand (or like) our circumstances. He is our refuge and strength,
a very present help in trouble (psalm 46:1).